Alexis Holmgren, LQTS Type 5
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Alexis Holmgren, LQTS Type 5

Alexis Holmgren, a 20-yr old from Alberta Canada, was diagnosed with LQTS Type 5 when she was 12. Growing up she experienced multiple fainting spells after basketball practice and three near-drowning events between the ages of 10 and 11, but as she reveals, LQTS doesn’t define her.

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Emily Boone
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Emily Boone

In 2008, just two days before her 16th birthday, Emily was diagnosed with LQTS, and as a young athlete the diagnosis marked a difficult personal transition.

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Marjaan Barbano, LQTS Type 5
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Marjaan Barbano, LQTS Type 5

When Marjaan was finally diagnosed with Long QT Syndrome Type 5 in 2019, she was very relieved. For all these years, she knew something wasn’t right. Finally, it was a relief to have an answer, and in reading about Long QT Syndrome, she found it described all her symptoms.

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Sarah Michaelis-Heidman
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Sarah Michaelis-Heidman

Sarah Michaelis-Heidman is a 25-year old from Barrie, Ontario, who was diagnosed with Long QT Syndrome in 2019. A three-time cardiac arrest survivor, Sarah has an implantable cardioverter-defibrillator (ICD) to correct her life-threatening cardiac arrhythmias.

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Dr. Maroua Khalifa, Ph.D
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Dr. Maroua Khalifa, Ph.D

Dr. Maroua Khalifa Ph.D is a research scientist reviewing chemistry and biology reports, designing new molecules and their synthetic routes to target specific biological pathways, and developing and executing multi-step synthesis of new small molecules.

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What is Long QT Syndrome (LQTS)?
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What is Long QT Syndrome (LQTS)?

Long QT Syndrome is a rare disorder that is often undiagnosed. LQTS causes an elongation between the Q and T waves during a heart beat. The lengthening of these waves can cause unexpected and life-threatening arrhythmias.

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